Timms Review PIP workshops: register your interest by 21 August
The government’s Timms Review of Personal Independence Payment (PIP) is running a series of workshops this autumn, and it wants to hear from disabled people and people with long-term health conditions....
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Supporting Someone with CMT: A Guide for Carers
Carers Week 2026 was a timely reminder of just how many people across the UK are quietly caring for someone they love, without pay and often without enough support. Behind many people living with...
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CMTUK Conference — 40 years Turning Knowledge into Support
25 April 2026 | Hilton Reading This year, we didn’t just come together to learn and connect, but to mark forty years of supporting people living with Charcot-Marie-Tooth disease across the UK. You...
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CMT Kids Family Day Trip to the Magna Science Adventure Centre
This summer, we are getting the CMT family together for a proper day out. On Saturday 6th June 2026, we are heading to the Magna Science Adventure Centre and we want you there! It’s the perfect...
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Choosing the right rollator for (Charcot-Marie-Tooth) CMT to support your...
If you are living with Charcot-Marie-Tooth disease (CMT), you may notice changes in your mobility over time. Muscle weakness, balance difficulties and fatigue can all affect how confident and...
View ArticleOur Annual Report 2024-2025
Our 2024-2025 annual report covers our key activities and achievements over the past year, the impact we have made and a complete financial summary. We want to say a huge thank you to all of our...
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CMT Webinar Series
The EURO-NMD Webinar Series on Charcot-Marie-Tooth Disease wrapped up this week, and all four episodes are now available for those who missed the live sessions or want to revisit the discussions. The...
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CMT episode 3: Biomarkers and Outcome Measures for Clinical Trial Readiness...
January is Charcot-Marie-Tooth Education Month PRESENTERS: Prof. Mary Reilly (University College London, Department of Neuromuscular Diseases, UK) Mary M. Reilly graduated from University College...
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Save the Date: CMTUK’s 40th Anniversary Conference – Early Bird Now Open!
We’re delighted to invite you to a special CMTUK Conference in 2026, as we celebrate 40 years of supporting the CMT community! This milestone year brings together four decades of experience, progress,...
View ArticleCMT episode 2: Progress in genetic diagnosis for neuropathies
January is Charcot-Marie-Tooth Education Month To mark this, a European online webinar series will take place throughout January, focusing on Charcot-Marie-Tooth disease. Recording now available thanks...
View ArticleWin this year’s membership fee back!
If you haven’t completed the membership survey please do it now, it is important information for us, helping us analysis and understand our membership better. The more we can do that the better reach...
View ArticleCovid19 Vaccinations
We received the following statement from Professor Mary Reilly on 4th December 2020 regarding the COVID-19 Vaccine: All the information we have to date suggests that there are no safety issues...
View ArticlePapa Bouba Diop
We learned over the weekend of the sad death, aged 42, of Senegal and Premier League footballer Papa Bouba Diop. During his career he played for Portsmouth, Fulham, West Ham and Birmingham City. He is...
View ArticleWatch Our CMT Q&A Session with Professor Mary Reilly
As part of #CMTAwarenessMonth, Professor Mary M Reilly joined us for a Q&A session. Professor Reilly answered questions from the CMT community as well as helping us to raise awareness of the...
View ArticleLetter to Sir Simon Stevens on Restart of Neurology Services
Letter-to-Sir-Simons-Stevens-on-Restart-of-Neurology-Services-FINAL-7-July-2020Download The post Letter to Sir Simon Stevens on Restart of Neurology Services appeared first on Charcot-Marie-Tooth UK.
View ArticleCMT UK Annual General Meeting
The CMT United Kingdom AGM, which was postponed due to measures imposed to combat Covid19, will now take place on 27th June 2020 at 2pm. This will be an on-line meeting due to the on-going...
View ArticleCOVID-19: Guidelines on Charcot Marie Tooth disease from the Neuromuscular...
COVID-19: Guidelines on Charcot Marie Tooth disease from the Neuromuscular Service, National Hospital for Neurology and Neurosurgery (NHNN), Queen Square, London. Prepared by Professor Mary M Reilly...
View ArticleLetter from Professor Mary Reilly
27th March 2020 Dear All, I appreciate this is a very difficult and worrying time for all patients including patients with Charcot Marie Tooth disease (CMT).It is important to remember that most...
View ArticleCMT Coronavirus guidelines 2703
COVID-19: Guidelines on Charcot Marie Tooth disease from the Neuromuscular Service, National Hospital for Neurology and Neurosurgery (NHNN), Queen Square, London. Prepared by Professor Mary M Reilly...
View ArticleAssociation of British Neurologists Guidance on COVID-19 for people with...
The post Association of British Neurologists Guidance on COVID-19 for people with neurological conditions, their doctors and carers appeared first on Charcot-Marie-Tooth UK.
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